Health/Disability Related Support Groups | The Marfan Foundation
22 Manhasset Ave, Port Washington, NY 11050-2023
People with Marfan syndrome, Loeys-Dietz syndrome, VEDS, and other genetic aortic and vascular conditions; and their family and friends
Mon-Fri 9am-5pm Eastern Time
800-862-7326
Voice - Toll-Free: 800-8-MARFAN
English
Call or visit website
None for information; conference fees vary
AZ
Description
Provides information and support for people with Marfan syndrome and related connective tissue disorders. Also provides phone and online support groups. Hosts community walks and events, webinars, regional symposia, and a conference.
Last Assured
10/01/2024
What's Here
Providing organization
The Marfan Foundation
Provides information and support for people with Marfan syndrome and related connective tissue disorders. Also provides phone and online support groups. Hosts community walks and events, webinars, regional symposia, and a conference.